Marfan syndrome is a life-threatening genetic disorder affecting many people here in Cleveland. It causes the body's connective tissue, which is found throughout the body, to not function properly. This affects many body systems, including the skeleton, heart, lungs, and eyes. What makes Marfan life-threatening is that the aorta can grow to be so large that the walls weaken and tear, which causes internal bleeding and can cause death if not immediately treated. This is the most serious of the many complications Marfan syndrome causes. About 1 in every 5,000 people are affected by Marfan syndrome.
Learn more about Marfan Syndrome from The Marfan Foundation here, or click on their logo below!
March for Marfan was started 11 years ago by Maya Brown-Zimmerman as a brother of Case Western’s Alpha Phi Omega-Theta Upsilon chapter. Maya has Marfan Syndrome, and began the march with the help and support of The Marfan Foundation and her chapter. Over the years, several other brothers in Case Western’s chapter have had similar connective tissue disorders, or have had family members with Marfan Syndrome. For this reason, the March for Marfan event holds a personal meaning for the chapter at CWRU. Today, Theta Upsilon continues holding the event to support these brothers, as well as other members of the community affected by Marfan Syndrome, and Maya continues to advise and mentor for the march.
The race is held on March 26th, 2017. Check-in is at 9 AM, the race begins at 10 AM and the walk begins at 10:15 AM. The event lasts until approximately 12:30 PM. A light breakfast and lunch will be provided.
The event check-in and activities will take place in Wade Commons (marked on the map). Parking can be found in the Lot 46 parking garage, behind the football field off of E 118th St. At the toll booth for Lot 46, mention you are attending March for Marfan and your parking fee will be covered. For any concerns, please email Joseph Thiel at firstname.lastname@example.org
The starting point for the race is Wade Commons, located at 11451 Juniper Rd, Cleveland, OH 44106, which is also shown on the map below.